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Our goal is to educate and empower Hashimoto’s patients to treat the underlying autoimmune condition to thereby reduce symptoms and prevent further decline. There are so many Thyroid and Autoimmune related resources and we hope to merge all of these resources here to ease the burden of others who are newly diagnosed or simply new to researching their disease.  We share information for patients by patients. What we’ve seen from patient experience is that mainstream medicine typically only treats the thyroid and in many  cases patients are not even aware that they are dealing with an Autoimmune disease with many possible underlying factors.  These factors usually include food sensitivities, stress, environmental triggers, nutrient deficiencies, and hormone imbalances. Everyone is different and determining your own needs will require some trial-and-error, patience, and determination. To start, we recommend a thorough anti-inflammatory elimination and provocation diet such as the autoimmune protocol. In reducing our intake of likely allergens, we are able to tame our immune system, enable detox, correct blood sugar, hormone, and gut flora imbalances, recover from nutrient deficiencies, and determine our own unique food sensitivities. The process brings us better in tune with our bodies so that we can more clearly establish where our symptoms are coming from.

Hashimoto’s 411 was founded as a Facebook group where patients could discuss and share information with a focus on treating the whole autoimmune disease and any and all underlying conditions. We are proud to have introduced this website as well as a new Facebook Page separate from the group where we are able to highlight and provide further education on trending topics from within  the group.

43 Responses to Home

  1. Daniella says:

    When someone writes an article he/she maintains the thought of a user in
    his/her mind that how a user can understand it. Therefore
    that’s why this post is outstdanding. Thanks!

  2. Marsha says:

    Can you go to hyper if you have hashimoto? Iam only on 50mg but feel hyper.

    • Darla says:

      With hashi it is typical to swing between hyper and hypo…the key to stopping the swings is to get tuned in to what food/emotional/environment things trigger it. I highly recommend starting with going gluten free and doing an elimination/provocation diet. We recommend the one Dr. Kahrrazian uses with his patients..it can be found under the blog section at thyroidbook.com then go to the auto immune diet page. Hope that helps you get started. You can also join facebook groups https://www.facebook.com/groups/hashimotos411/ and https://www.facebook.com/groups/EPDiet411/if you haven’t already.

    • Dima says:

      I am always hyper even before the hormones (also 50mg). But my worst symptom is sweating in the face and neck. I am eating sugar and can’t stop it.

  3. Tifiny Bruce says:

    I was diagnosed just less than a year ago. Put on over 30 lbs and am currently on 90mg of Armour but still feel exhausted!!! Any suggestions? I am gluten free.

    • Darla says:

      I highly recommend taking diet a step further than gluten free and do an elimination/provocation diet. Sometime the triggers can be more than gluten. We recommend the one Dr. Kharrazian uses with his patients..it can be found under the blog section at thyroidbook.com then go to the auto immune diet page. Hope that helps you get started. You can also join facebook groups https://www.facebook.com/groups/hashimotos411/ and https://www.facebook.com/groups/EPDiet411/if you haven’t already. Next time you do lab work I would check in to making sure you get free t3, free t4, reverse t3 and b12 and vitamin d3 done…low b12 and d3 can impact energy levels…so can cortisol and that needs to be checked via a 24 hour cortisol test. Hope that helps give you some ideas to pinpoint where the energy issues are stemming from.

  4. Tina Bolger says:

    Would love to join as have Hashimotos for 8 yrs and need support as I feel dreadful. Tnx Tina

  5. Teresa Cecil says:

    I was diagnosed with Hashimotos today. Can you point me to where I can read more on a diet to help alleviate symptoms?

  6. Tamara Torres Fuerst says:

    Can you recommend a doctor in the Northern Virginia that is knowledgeable with Hashimoto’s because I cannot find one. Thank you. Tamara

    • Darla says:

      There’s a practitioner locator out on thyroidbook.com…if that doesn’t bring up anyone in your area I highly recommend working with Dr. Geronimo – he’s based out of San Diego but he does long distance phone consults. We started working on addressing my hashi issues back in 2009 and I highly recommend him. Several other people on the 411 FB group have worked with him as well. He’s a great doc! His website is http://www.fecsd.com/ if you want to check it out..he’s got some helpful videos posted there too.

  7. Aileen says:

    I am new to this disease.. I need to learn so much

  8. Christine Guma says:

    I was diagnosed with Hashi’s in 2004 but feel that I have had it since around the age of 16. I am also suffering with Fibro and being tested for Lupus.

  9. Patsi isley says:

    My TPO is in the 800’s. Reverse T3 was 27…other markers in range. But have the morning jitters. Cannot tolerate most meds. Take 50 mcg synthroid. 10 cytomel..100 Selenium. The anxiety is the biggest aggravation. ??? Any suggestions?

    • Darla says:

      What are you doing diet wise? Gluten free? Have you done an elimination provocation diet? I highly recommend starting here: http://thyroidbook.com/blog/autoimmune-gut-repair-diet/ Anxiety can be triggered by a food..it can also be from poor adrenal function.(not being able to tolerate meds is a symptom of adrenal fatigue)..I recommend checking those via a 24 hour saliva test –if your doc doesn’t have them you can order on your own through canaryclub.org. Hope that helps you pinpoint where the anxiety is coming from.

  10. Lisa Plummer says:

    Cool site

  11. Amanda Stoermer says:

    Please add me to your Facebook group.

    Thank you,

    Amanda

  12. Beth Ann says:

    how do I join the group?

  13. Denise says:

    Hello. I have had Hashimotos disease for 22 yrs now I’m on Synthroid, which works pretty good for me. Recently diagnosed with Vitiligo and RA :( I am looking for a genuine support group to join

    • Darla says:

      Welcome to the site Denise! Are you doing anything diet wise to address your symptoms? The diet we highly recommend can be found on thyroidbook.com. Once you’ve had a chance to address the gut I would look in to low dose naltrexone due to you having multiple AI diseases…it can help modulate the immune system. lowdosenaltrexone.org is a great resource and Got Endorphins? is a great facebook group to join as well.

  14. Kristina says:

    I diagnosed myself with Hashimoto’s 4 years ago, and had a doctor confirm. I had multiple symptoms that were incorrectly diagnosed individually for many years, that caused my quality of life to be very poor. I was in constant pain, and had anxiety attacks over something as simple as a rain shower or driving my car. Since starting levothyroxin my health and quality of life has improved greatly. I even became pregnant at 34 for the first time, and delivered a beautiful, healthy baby girl! But I still have some difficulties such as tiredness, weight gain, joint aches, and brittle hair. This week my dr checked my vitamin D level and has decided that I should be on a 50,000 unit/ week supplement. I have been researching online and have found that studies have shown a correlation between low Vitamin D and auto-immune disorders such as Hashimoto’s. I was wondering if anyone else has experienced this and if supplementation has made a difference in their lives.

    • Darla says:

      Kristina, Yes, low vitamin D3 levels are very common with auto immune disorders so the majority of us do supplement. I’ve been using Apex Liquid Ultra D since 2009..I take 10K IU per day to keep my levels around 70 (lab range ends at 100). Please double check to ensure that your 50,000 supplement is D3 and not D2. Some doctors prescribe D2 and it’s not the same as D3.

    • Hi, Kristina! I Hashomoto and chronic autoimmune urticaria .For few days, I started taking vitamin D3, and already feel a little change. I sleep better, I’m not nervous, a little began to pass my bones ache. It is a difference that feels.

  15. swtalker143 says:

    I went to a holistic chiropractor as I was tired of hearing that my symptoms are in my head. He ran some extensive hormone tests and said to me “Hannah, we have to run some additional tests, but it’s pointing to Hashimoto”. The only thing that came up abnormal as he sent me the lab work was my Thyrogolubin which was 1.0, my WBC was 2+ and my vitamin D 25-Hydroxy was only 20.9. I will be getting a 24 hour cortisol test this coming week as well a 96 allergy test. When all lab is back I will be seeking an endocrinologist for a second opinion. I do have to add that I feel like the Chiropractor is on the right track, but I’m not a doctor. So with this all said can someone please add their 2 cents here and tell me whether they agree with the lab results and if someone could recommend a great endocrinologist in Broward or Palm Beach county Florida it would be greatly appreciated. Thank you, and I hope you are all on the way to a speedy recovery.

    • Darla says:

      It sounds like you are on the right track with the lab work you’re having run. I’ve not had good experiences with endo’s when it comes to hashimoto’s because they don’t address the auto immune system as a whole…they barely have an understanding of the thyroid because most of them specialize in diabetes to begin with. You may have better luck getting a second opinion from a different functional medicine doc…thyroidbook.com has a practitioner finder and so does functionalmedicine.org We also have a list of recommended docs on the Hashimoto’s 411 Facebook group page. There are also doctors who do long distance phone consults – I worked with Dr. Rommel Geronimo and have been very happy with him. His website is fescd.com if you are interested.

  16. Elizabeth says:

    I need help finding a supportive doctor in the Sacramento, CA area, any suggestions?

    • Darla says:

      Elizabeth, You could try going to thyroidbook.com and use the practitioner finder on that page to see if there’s a doctor near you. I worked with Dr. Rommel Geronimo via long distance consults and highly recommend him as well. His website is http://www.fecsd.com/. We also have some doc recommendations on the Hashi 411 group files section on Facebook. Good luck!

  17. hughess1 says:

    Hi Everyone! I am new to this site but not new to Hashimoto’s. I was first put on thyroid medication 30 years ago and learned I had Hashimoto’s around 5 years ago. I read Dr. K’s book two years ago and stopped gluten. The past 9 months I have followed the Dr. Fuhrman “Nutritarian” way of eating and although he allows some grains, I have not been eating any grains except corn. Just couldn’t give up my tortilla chips! I also have eaten very little animal protein (eggs, meat, dairy) in the last 9 months and focused on fruits, veggies, nuts, and beans. However, since discovering this site, listening to talks on Thyroid Summit and getting The Paleo Approach book, I decided to change my diet. A little more than one week ago I started doing the elimination of the main problem foods including soy, dairy, eggs, nuts, nightshades as well as following the paleo approach with no beans. I am taking probiotics, digestive enzymes, ox bile (because of no gall bladder) and HCL with betain. So the biggest change in how I am eating is adding back meat and taking away beans and nightshades. Since making this change I have been having loose bowel movements daily. I am wondering if you have seen this before? I wasn’t having that problem at all before. I know the gall bladder helps to digest fat and that is why I am trying to help it out with all the digestive enzymes. But maybe it needs additional help. Or could this be something like detoxing and shedding all the overgrowth of bad bacteria? This may not be something anyone can speak to but thought I would see if others have had this issue when making the switch to the AIP diet? Thanks for any ideas in advance?

  18. hughess1 says:

    Sorry, I forgot to mention above that I also have eliminated all corn as well. Now I am not eating any grains of any kind. And I have the Autoimmune Paleo Cookbook too that I am using for guidance.

  19. katyolson says:

    I was diagnosed with Hashimoto’s approx. 3.5 years ago. Started on Armor, now on Nature Thyroid for 2 months. Feeling better on Nature Thyroid 32.5. Had my galbladder removed late 2012, just fyi. All seems ok. Just realized for the last 6-9 months, I have been losing my hair. I have always had a very good amount of thick, wavy hair, so I didn’t really notice the loss until lately. My blood tests are normal, vitamin D good. I’m gluten free and stay away from soy as much as possible. Has anyone experienced hair loss even when on thyroid hormone and levels are normal? Has the hair grown back or improved over time? Any comments from experience with this would be really appreciated! Thanks.

  20. Brenda says:

    I haven’t been diagnosed with Hashimoto’s but after all my research I feel that is what I must have. I have a goiter, but labs show my thyroid is functioning just fine. ;)

  21. beckyb70 says:

    I am seeking advice from those who know:-)

    I’m a 43 year old woman that has complained of symptoms for twenty years. Things like hair loss, fatigue, low Ferritin not resolved with supplements.
    Than about ten years ago I began getting chronic ear infections, treated by three years of antibiotic that did nothing. Very dry skin, heart paltations, hair loss for six months every six months, short term memory laps, pains all over body, orthodontics, tingling in legs, terrible muscle cramps in hands & feet, digestion problems that feels like Celiac with a negative test. Swooshing in head and rapid pulse that is only relieved after being off all processed foods for a time period. I also get hives if I eat grains or processed food.
    The doctor have ALWAYS said everything is normal, just take iron.

    Than a doctor accidently order a Thyrogobulin yest that came back slightly high at 44. When asked about this he said neer mind that test is used when somone has their Thyroid out to see if there is still Thyroid hormone left.
    My opinion on doctors could not be lower at this point, as one knows when someone is off with their body.

    Can anyone tell what what if anything you see in these Thyroid tests.

    Thyrglobulin 44 high
    TPO 15

    Free T4 1.1
    Free T3 2.7
    TSH 2.0

    My mother and older sister have both been Hypothyroid for a while.

    Greatly appreciate for any opinions!

  22. sherri clark says:

    Hi, I was diagnosed with Hashi’s last Fall and have been GF, DF, and soy free since then (other than a little sheep/goat cheese). My thyroid is still functioning, although not at an optimal level. My main complaint is rapid heartbeat, especially in the middle of the night. I did a Cyrex Lab blood tests to check for food sensitivity and came up with none! I guess my main question is if anyone else has struggled with this and if they were able to pinpoint the trigger.
    Thanks so much for your time and how you help others through this site!

  23. Rose Smith says:

    I was a size 10 when married…after 3 pregnancies; painful joints… Reaching a size 16… Being diagnosed with RA… , and 18 years of marriage, my husband told me if I cared and respected myself I would loose weight. He left me for a woman working under him… (Literally). Several years later… A size X…high blood pressure…congestive heart failure, I saw a new doctor and was told I was hypothyroid. After taking levothyroxin nothing much happened.. I kept gaining. it took me 6 months to loose 6 pounds. I tried another dr., and she looked at me and said “You are fat. You are just fat!” After several visits I realized I had to try again. The next doctor Did an ultra-sound which showed 4 nodules on one side and 3 on the other side of my thyroid and sent me to an ENT. He looked at me and said you have Harishmotos Thyroidis. He did a biopsy… After waiting 2 weeks the results showed it was not cancer which he had hinted at. He suggested I do research since it was not curable. I really did not accept this. If it came for a reason, it should be able to leave. I read about approved foods for this problem and began taking virgin organic coconut oil. I have lost 5 pounds in 2 weeks. I also read to not eat anything white…except pears. (no bread, rice, potatoes, pasta, dairy etc). I can eat sweet potatoes and pears and other fruits. I will keep trying… I find Xanax helps my panic attacks, selenium, vitamin C and B12 and a multi seem to help as well as something prescribed for painful joints. Also say a prayer, it keeps me from pulling my hair out, which is already falling out by itself. Bless you all!

  24. Lisa says:

    Thanks so much for your insight. I am wondering which of the food sensitivity tests to take. There are so many and I don’t want to waste my money with inaccurate results. Of the myriad labs (Cyrex, Oxford, Genova, Allatess, US Biotek, Entero, Alcat) which is best? Then there are the various tests: (Cyrex’ various arrays; ELISA, MRT (mediated release test). It’s all so confusing. Also, while I’m at it should I test for the gluten intolerance as well? (If I have celiac on top of the Hashi’s might be worth knowing? Or not since I’ve gone GF anyway…) Anyway, your help is much appreciated.

  25. Hello there! I’m from Romania .I Hashimoto and chronic autoimmune urticaria .You tell me what natural supplements can take out of Eutyrox and antihistamines? Thank you!

  26. Carla says:

    GAPS foods and check for Candida…
    That was my culprit. Then I healed my gut.

  27. mtinker says:

    I woke up last night with rapid heart rate sweats and lightheaded.. I thought I might be having an anxiety attack I was scared. I have hashimotos disease and was diagnosed five yes ago.. But here recently I went to my PCP Dr. And he made me wear a 24hr. Holter monitor.. Results came back normal on that.. So I’m wondering if anyone else has had this problem with this disease and what I can do.

    • lindeyrig says:

      Look in to adrenal fatigue by checking them with a 24 hour saliva test. You can order the test on your own through canaryclub.org.

  28. Amy Ekis says:

    Could anyone provide some input from my labs (even though they’re from August)?
    TSH 0.515
    Free T4 0.87
    Free t4 3.5
    My RT3 number isn’t listed for some reason but says normal.
    I’ve been on 65 mg of WP thyroid each morning and 32.5 at 4-5 pm although I’m not super great about remembering this dose.
    I’ve been on the AIP diet since May and my supplements include: Selinium, magnesium, DHEA, progesterone cream, betaine with pepsin with meals, an adrenal fatigue blend, a good probiotic, and 5-htp. I feel *ok* for the most part other than some lingering mild depression and for the past 11 days a bad headache. Saw my dr today but that wasn’t very helpful. She told me to come off the 5-htp (which I felt like was helping darn) bc it could be causing the headaches. I obviously have some work to do in the hormone dept. any other advice? I know my tsh isn’t ideal. Should I decrease my dose? Dr said it was “normal” of course. I had a host of other blood work done at the August apt as well but everything came bk negative or normal (including h pylori, Lyme, rheumatoid, stool culture, clostridium deficile toxin, ova & parasites, rotavirus antigen, anti-Ena antibodies, and a bunch more) the only thing that came back was too high vit d and blood in my urine (retested those today). If love any input and advice. Thanks!! :)

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